Barry Power Station staff set for Brecon Beacons trek in aid of little boy with rare genetic brain disorder
Updated 3:03pm Wednesday 4th June 2014 in News
FUNDRAISING: Felix Forbes was born with a rare genetic brain disorder. His family are fundraising for therapy and specialist equipment
BARRY Power Station staff are set to embark on a trek across the three highest peaks in the Brecon Beacons in just 12 hours in aid of a little boy with a rare genetic brain disorder.
Centrica Barry Power Station colleagues Ben Reynolds, Elsa Mitchem, Andy Davies and Steve Everitt are set to take part in the Trekfest Beacons 2014 Challenge on Saturday, June 7.
During the 29 mile trek they will cross Pen y Fan (886m), Corn Du (873m) and Cribyn (795m) as they take part in the mountainous ordeal.
The aim of the charity challenge is to raise money for local youngster Felix Forbes.
Felix is a very happy and cheeky 22-month-old with a very rare genetic brain disorder called lissencephaly and miller-dieker syndrome. Lissencepahly literally translates to ‘smooth brain’ meaning that during pregnancy his brain didn’t fully develop the full six layers a normal functioning brain has, but instead has only four. This condition impacts in ways many people take for granted, like swallowing food for example or even holding up your own head. Felix's mum and dad had almost 48 hours of normality with their newborn before being told that there was something wrong, and then at three months being given the diagnosis that their baby boy would never walk or talk and most children with this condition won’t see past infancy. In spite of this Felix continues to surprise his medical team and family. His smiles and cheeky grins leave an impression on everyone who meets him.
In order for Felix to make as much progress as possible, his family work closely with the NHS and a network of therapists to try to build his strength so that one day he may be able to roll over, hold a toy and even sit on his own. With the help of the NHS he is responding extremely well and always progressing but unfortunately the amount of time the therapists are able to give him just isn’t enough to meet his needs so his family are raising funds for Tree of Hope to give him the best possible therapy and specialist equipment.
You can sponsor the charity challenge, and Felix’s bid for therapy to build up his strength, at http://www.justgiving.com/BPSFelixJune2014
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